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Discussing a hereditary condition within a family requires a sensitive and ongoing dialogue that evolves as a child matures. It…

For individuals or couples aware of a family history of muscular dystrophy, the prospect of starting a family often comes…

Pregnancy is a significant physiological undertaking for any woman, but for those living with muscle weakness or a diagnosed myopathy,…

Most people with myopathies can safely go through pregnancy and birth, provided they receive specialist multidisciplinary care to monitor their muscle, heart,…

For individuals in the UK who carry genes for muscular dystrophy, there are several medical pathways available to help manage…

Children with myopathies can and should participate in physical education and school sports through tailored adaptations that prioritise safety and inclusion. In…

Transferring from paediatric to adult healthcare is a significant milestone for teenagers living with muscular dystrophy or myopathy. This process,…

Receiving a diagnosis of muscular dystrophy for a child marks the beginning of a new journey for the entire family,…

Children diagnosed with muscular dystrophy require regular and comprehensive monitoring to manage the progression of muscle weakness and address associated…

Carers and family members play a fundamental role in the long-term management of muscular dystrophy and myopathy, providing essential assistance that ranges from physical…